Fun-Fun
Thursday, September 21, 2006
How fun is my life? Let me count the ways...
Let's see... I had a conoloscopy today. That was certainly fun. There's nothing like drinking a gallon of goo to clean you out, being on a clear liquid diet for two days, being stuck countless times while the nurse tries to hook up an IV when you're dehydrated, and then having a doctor... well we won't go into that part.
Actually this one wasn't as bad as the last one. They give you drugs so you don't really remember anything. Last time the drugs didn't work and I rember lots of pain and crying. This time I really was out of it. I have no memories - bad or good. It's defantly better that way.
The doc thinks it really is ulcerative colitis and despite my hopes, is not related to food allergies. Bummer in a way because I was hoping I could make lifestyle changes and will this whole thing away. So, now they are going to start me on immunosuppresants and probably a steroid. The steroids mess with my head. I won't be able to take care of Lilly if I'm on them. It's going to be horrible!!!!!!!!!!!!!
My neighbor's husband had some strange medical problems. After being given pill after pill by his doctors, he went to MA to see a famous doctor. The doctor ran all sorts of strange tests, gave him some supplements, and now the guy is fine! So, I'm going to take a trip up to MA and see what this guy thinks about my situation. I just bought his book, Ultraprevention. Originally I had planned to read it so that he wouldn't have to waste time telling me what was in the book, but could address my specific problem. As it turns out, I really like the book. It makes a lot of since. I'm going to call and see if I can get in to see this guy. Meanwhile, I'll make some of the dietary changes that he recommends and see what happens.
posted by Avorie @ 6:02 PM,
5 Comments:
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At 4:53 AM,
Emmakirst said...
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Oh the joys. The colono is much better in a sedated state of mind. :) At least you have a more clear diagnosis. I mean, in terms of UC there is eventually a cure. Not that you want to go that route anyday soon, but there is a cure. I hope that the talk about the supplements works. Take care.
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At 12:52 PM,
liz said...
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Woof. Sounds tough--I'm sure you'll find strength you never knew you had. A healthy Mom means a healthy and happy baby. You do whatever you need to do to take care of yourself and be the best Mom you can be for your adorable daughter.
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At 3:11 PM,
Avorie said...
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Emmakirst - in my case it wouldn't be a cure. I have the markers for both Crohn's and UC. So, if they do surgery, it'll simply migrate upwards and turn into crohn's. Double bummer huh?
I'm starting my immunosuppresants today. -
At 3:30 AM,
said...
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My sister is 18, and was diagnosed with UC just on 2 years ago. Please, please let me know any information you find out (edgeoftwilight@gmail). Not too much is known about it over here it seems, and my sister has been through a myriad of specialists and doctors. I'm extremely interested to know what your doctors over there have to say about it. Thank you :)
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At 10:19 PM,
Reesh said...
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Yes I never liked those damn colonoscopies. I remember my first one, I was 18 and the doc never told me that the white chalky stuff slowly leaks out afterwards. I went straight from the colonoscopy to an exam and I was horrified to find after I stood up from the exam that my chair and pants were covered in the white chalky substance!!!! Can you say most embarassing moment ever!!!! I stayed in the room until I was the last person to finish the exam and snuck out with my jacket tied around my waist.
Anyways, just wanted you to know that I am still here for you and reading all about your trials. I don't always have the time to comment, but still know that I wish you the very best and am thinking of you with hopes of a fast smooth recovery. Please feel free to e-mail me anytime you need to.
Cheers,
Reesh
